Child dementia is a rare, incurable disease that turns children and their families upside down.
The disease NCL , which affects children and is known as "child dementia" , has so far been little researched. There is no cure for this metabolic disease, it progresses unstoppably and leads to early death.
The affected children gradually lose their eyesight, suffer from epileptic seizures and their cognitive and motor skills decrease continuously. In most cases, this ends with the death of those affected before their 30th year of life.
Image source: Freepik
But there is hope . The NCL Foundation is committed to promoting research projects at both national and international level. Their goal is to give the children who are affected by the neurodegenerative illness to give new hope by developing and promoting therapy and healing approaches
Donations can through art auctions to support the treatment and care of children with children's dementia. Since November 13, 2023, there has once again been the opportunity to buy works of art online and thereby financially support research for rare children's dementia NCL.
The proceeds from the virtual auction - which is carried out by the NCL Foundation - are invested directly in the promotion of research projects. be submitted directly via the online portal of United Charity
The importance of art auctions in the fight against children's dementia
There are diseases that hit us particularly hard and children's dementia is one of them. This disease mainly affects young people and leads to a rapid decay of nerve cells in the brain.
A diagnosis not only means a life in care, but also the end of lightness for the whole family. It is important that we deal with this topic as a society and find solutions to help affected children and their parents.
This is where the NCL Foundation and the fundraisers you carry out every year - such as the art auctions with life artists - come into play here: they not only offer a platform for awareness of the topic of childhood, but can also collect funds for research projects.
Many renowned artists are committed to offering their works at auctions in favor of combating children's dementia. By buying works of art at auctions, people can actively help combat the disease.
Virtual art auction 2023 of the NCL Foundation - for a future without children's dementia
This year's virtual art auction of the NCL Foundation has started and is held for three weeks to put the rare children's dementia in the spotlight.
As in previous years, renowned artists have made their works available from Germany
A total of 22 works of art on Europe's largest non -profit online portal United Charity offered for sale.
The collection is impressive and includes works by different styles and high -quality work that make the heart of art lovers beat faster.
In addition to Werner Pawlok, Alex Diamond, Jens-Christian Wittig, Ulrich Kresse, Ernst Fuchs, Constance Renken and other well-known artists, Rita Starck, Josef Werner, Armin Mueller-Stahl , Hendrirk Tuttlies and Günter Grass as well as other talented artists. The implementation was made possible thanks to the committed help of the United Charity Team.
"I Count the Hours". His artistic focus lies on the social and cultural aspects of human coexistence.
The previous benefit art auctions have made a significant contribution to the fact that various NCL research projects are on the basis of the clinical test phase. However, the further steps in development are very expensive.
It is therefore urgently needed that the NCL Foundation receives further support in order to offer affected children and their families new perspectives for previously missing therapy and healing options.
Save the Date: The next live art auction will take place on 07.02.2024 in Jensen's warehouse in Hamburg. Feel free to remember the appointment.
More information
Further information is available directly from the NCL Foundation:
NCL Foundation
Holstenwall 10
D -20355 Hamburg
Tel. +49 (40) 69 666 74-0
Fax +49 (40) 69 666 74-69
Mobil +49 176 621 052 75
Annemie.luethje@ncl-stiftung.de
www.ncl-stiftung.de ; www.ncl-foundation.com
What is children's dementia and what effects does it have on those affected?
Children's dementia, also known as NCL (neural ceroid lipofuscinosis) , is a rare and fatal disease of the nervous system. Children between the ages of 5 and 8 are mainly affected.
The disease manifests itself through symptoms such as epileptic seizures, visual and hearing loss as well as motor impairments. The course of the disease is incurable and in most cases leads to death within a few years after the diagnosis.
For the families concerned, this means an enormous burden both emotionally and financially.
Care and treatment requires a lot of effort in time and money, which often leads to an overwhelming parents.
In Germany there are only a few specialized clinics that focus on the treatment of these rare diseases.
It is therefore important that those affected can quickly find contact with corresponding service positions in order to receive support for diagnosis and care.
How is children's dementia noticeable?
Child dementia is a degenerative disease in which brain cells are progressing. The symptoms can vary depending on the shape of the disease, but they usually occur in early childhood.
A frequent sign is a delayed course of development , both in the physical and in the spiritual area. Other symptoms can be: language loss, motor restrictions, mood swings and behavioral problems .
In the further course there may epileptic seizures and a deterioration in language and thinking.
Children with dementia can also have problems with memory and concentration. You may forget things or have difficulty keeping new information.
In later stages of the disease, there may be a deterioration in health, including a loss of the ability to speak or move independently.
impairment of vision and hearing can also occur.
Since children's dementia is a rare illness and the symptoms can vary, it can be difficult to diagnose it early. a thorough examination by a specialist is important to initiate the correct treatment and slow down the progression of the disease.
The causes of the NCL are genetic and there are no healing options so far. However, early diagnosis is important in order to be able to support affected children in the best possible way and to improve their quality of life.
Further information and contact points for those affected:
- https://www.pflege.de/Seiten/kinderdemenz/
- https://www.patient-information.de/kurzatinformations/ncl
- https://www.ncl-stiftung.de/kinderdemenz-ncl/Seinheit/
What are the causes of children's dementia?
This disease usually affects children and adolescents and is caused by genetic mutations that lead to a lack of certain enzymes .
This in turn means that toxic substances accumulate in the brain, which can lead to the long term to die of nerve cells. There are different forms of children's dementia, each caused by different genetic mutations.
Unfortunately, there is no healing for children's dementia and the treatment options are limited. However, some drugs can help relieve the symptoms and slow down the progression of the disease. It is also important that patients with children's dementia are looked after by an interdisciplinary team that consists of various specialists such as neurologists, ophthalmologists and physiotherapists.
Overall, children's dementia is a serious illness with a poor forecast. However, it is important to emphasize that this disease is very rare and that not all forms are genetic. An early diagnosis and adequate treatment can help improve the quality of life of the children concerned.
The role of the media and artists in increasing consciousness for the subject of child dementia
The media play an important role in the spread of consciousness for the topic of childhood. Also benefits of prominent and art auctions with the involvement of well -known art -creating attention to attention in the fight against this insidious disease.
By reporting on classic media and social media campaigns, more people can be drawn to the disease and actively participate in collecting funds for research projects to combat the disease.
Image source: Jomp, via FREEPIK
Renowned artists are often committed to a good cause and make their works available to support auctions in favor of children's disease organizations.
By buying art work at auctions.
The last art auction life artists took place on September 6, 2022 in Jensen's warehouse in Hamburg. The 20th anniversary of the NCL Foundation was also celebrated in this context.
Works were auctioned by:
Alex Diamond | Axel Rockfish | Benjamin Pichelmann | Chris Gust | David Tollmann | Elena Bulycheva | Frank Bürmann | Gisa Hillesheimer | Gisela Floto | Günter Sell | HJ Gottschalk | Heinke Böhnert | Hendrik Tuttlies | Isabella | Janine Achilles | Jonathan Meese | Joseph Beuys | Juliane Golbs | Kirsten Nijhof | Klaus Frahm | Klaus-Günther Küch | Manu Agah | Michael Penner | Michael Schmeichel | Nicole Leidenfrost | Otto Waalkes | Regina Samson | Rita Starck | Romero Britto | Sabrina Kreinsen-Tegtmeyer | Sara Pope | Theresa Winkler | Thomas Wunsch | Udo Lindenberg | Volker Kühn
Owner and managing director of Kunstplaza . Publicist, editor and passionate blogger in the field of art, design and creativity since 2011. Successful conclusion in web design as part of a university degree (2008). Further development of creativity techniques through courses in free drawing, expression painting and theatre/acting. Profound knowledge of the art market through many years of journalistic research and numerous collaborations with actors/institutions from art and culture.
